FORMAT: 216 x 138 mm • Illustrated • 208 pp

B ISBN 10 0-9547586-8-4    £7.99
PB ISBN 13 978-0-9547586-8-4    £7.99

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PUBLICATION    1 MAY 2006

THE BOOK

This is an extraordinary and moving account of a family coping with Friedreich's Ataxia, a debilitating genetic illness. It describes how Krystie and her family copied with the diagnosis, intensive medical treatment that followed and her battle to receive mainstream education. Krystie's bravery and zest for life is an inspiration to us all, but especially to those facing a diagnosis of genetic illness.

“My future’s full of uncertainty, sometimes I worry that because of my illness, I won’t be able to do much for myself later on in life; that all my days of fun have been and gone. But I realise that actually that isn’t true.  There’s always another happy day just around the corner.  Life is for the living, and I refuse to sit back and allow everyone else to move on without me. … But I do know one thing, whatever happens, I won’t waste a second of my life, not ever!”

THE AUTHOR

Molvia Maddox is a mother of five, runs a successful business consultancy and is working on her second book, Greener Grass, which describes the experience of Jamaican immigrants to Britain in the 60s and 70s.